Importance of getting tested

26 May

I think I rewrote this blog at least 4 times. How do you explain that it is soo important to get tested without offending anyone?

Maybe my story will help with that.

The brave readers who have read all my posts will know I was diagnosed as histamine intolerant by means of a skin scratch allergy test, where I reacted to the histamine control test. Altho I was given a pseudo allergene diet, other symptoms still continued. Because I was treated so badly at hospital, I decided to find myself a dietician.

And I did found one! This specific dietician specialises in food intolerances, so I was feeling quite happy with myself.  This dietician taught me a lot about my condition, and helped me trying to understand my other symptoms. By means of elimination, she thought the other symptoms I had (severe headaches, water retention and some more) were fructose related. Even worse, she thought these symptoms were the result of an extreme fructose malabsorption. So on top off my histamine low diet, I now had to avoid an additional amount of foods. Having both a histamine low and fructose low diet doesn’t leave out a lot to eat I can tell you..

On top off that, I was still getting headaches after my breakfast of buckwheatcrackers.  Then my dietician thought I might also be oversensitive to nickel. Which meant scratching even more. I most definetly wasn’t getting enough nutrients, and I went to see my GP about it. Both her, and a dear friend of mine convinced me to go back to hospital to get the fructose malabsorption tested.  I can’t say I was treated any better, but at least now I had some result: no fructose malabsorption!

What does this mean? I was on the wrong diet for months. I missed on important nutrients in my diet, because of a misdiagnosis, even tho it was well intended! And if I had decided not to get tested for fructose malabsorption, I might have been on the wrong diet for so much longer!

I’m most definetly not saying dieticians are bad for you, because they are most definetly helpfull! But elimination diets only get you so far! Get tested! Get results! If you test positive for a food intolerance, then you know you’re on the right way. If you test negative, you can exclude that already, and start looking for other causes.

I know its hard to find someone to take you seriously, but you will get there! And yes, testing is quite expensive, but at least you’ll know whats going on! Always make sure to get your diagnosis from a profesional, trust me, your nutrients are too important to just leave them out because someone thinks you might have this or that..

Stay strong, and have a fun and healthy diet!

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6 Responses to “Importance of getting tested”

  1. Adeila September 9, 2011 at 4:31 pm #

    Love your post. It is VERY important to be tested. I suggest people who are sick should look into the tests offered by EnteroLab too. They test for gluten, soy, dairy, yeast and nightshade intolerances — all overlooked by doctors yet very common. The gluten tests (a blood test) offered at doctors’ offices have an accuracy rate of about 20% which doctors often fail to mention. EnteroLab has a stool test which is about 95% accurate and there have been no complaints by the thousands of people who have tested themselves so far! http://www.EnteroLab.com I don’t work for them — I’m just one of the many sick people out there who found that their tests helped me immensely. I’d love to know about other tests out there too — if there are any — for salicylate, amine and other chemical sensitivities/intolerances. I’m trying to figure out if I am histamine sensitive at the moment and so if you have come across a histamine test, let me know!

    • histamine intolerance September 21, 2011 at 1:31 pm #

      Heya Adeila!

      Micki Rose at Purehalthclinic offers some good testing, including those of enterolab! I had tests done there myself 🙂

  2. Rose September 18, 2011 at 11:27 am #

    I would say that without a doubt, underlying all your problems is gluten intolerance. I have histamine intolerance, lactose intolerance, fructose malabsorption and salicylate sensitivity and ALL of them are caused by damage to the small intestine, due to undiagnosed gluten intolerance for many decades.

    • histamine intolerance September 21, 2011 at 1:30 pm #

      and you are right! I don’t have gluten intolerance tho, but non coeliac gluten sensitivity… its this bad I even had o scratch all corn products too (they contain gliadin, a form of gluten), rice and wild rice.. I will get there, but indeed, finding out gluten was such an issues did help me a lot! Up to healing!

    • heather December 2, 2011 at 2:05 am #

      Hi Rose… I am coming to the conclusion that I am in the same boat. Any chance you are healing and can tolerate more? Can you give me any tips on what to eat?

  3. Dana Tavares February 18, 2013 at 10:53 pm #

    I started working with “The Metabolic Typing Diet (R)” about 5 years ago. This is based on identifying the unique individual requirements of each person. This has helped a lot. Now working with “Functional Diagnostic Nutrition” in conjunction with the diet. This provided functional testing for hormones, gut function, detoxification, immune system. Just now looking into the histamine intolerance aspect.

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