About

Hello Everyone,

My name Is Nele, I’m Belgian and have only recently been diagnosed with Histamine Intolerance.  I found it extremely hard getting help from doctors, and understanding concerning the problem is hard to find as well. That is why I created this blog. Altho most of us do a fair amount of research ourselves,  we often feel alone in what we have. I’ll be posting my problems related to Histamine Intolerance here, so you  know you’re not the only one out there struggling.

Please do note that what I write down in my blog is based on personal experiences, and could vary from person to person.  Also make sure to consult a doctor, or an allergist before you take actions .  They will be able to refer you any further, and help you.

Make sure not to cut in your diet because of what you read here, but consult a food expert to help you.

Take care and stay strong,

Nele

10 Responses to “About”

  1. Corey Davis August 21, 2011 at 5:42 pm #

    I’m just starting my journey of learning about what I need to be doing to help me with this…. Thank you for sharing. 🙂

  2. Sue Howell September 21, 2011 at 7:45 pm #

    I too am just starting out on this journey and am feeling a little overwhelmed. It would be great to chat to others in the same situation and maybe get some help and advice.

  3. Idaho Home Grown November 27, 2011 at 5:16 pm #

    After attending a wine tasting event last night, wherein less than 2 glasses of wine were consumed for sure; but much of it was cask tasting; I experienced a horrible headache; very debilitating. I have a very sensitive system and am wondering if I have a histamine sensitivity or something like this. Totally new territory for me; I have no idea where to begin my own research. Thanks for sharing your info. look forward to more shared experiences.

  4. Karen November 30, 2012 at 9:37 am #

    Hi Nele, I also live in Belgium. I am originally from New Zealand. I have endometriosis, POTS, fibromyalgia, chronic fatigue, sinus issues and gastric reflux. My life is hell at the moment. I am being tested for mast cell problems. I was wondering if you know any specialists in Belgium who use genetic testing to diagnosis histamine intolerance. I and my kids all react to foods that are liberators of histamine but not many of the foods that are high in histamine. I’m thinking I either have mast cell activation disease or I have a mutation in my HNMT gene that methylated histamine and removes it from your body. Only thing is I don’t know where to get help. The top allergist I saw in Leuven clearly has no clue about genetics! I’ve been thinking about going to the immuneclinic in London but I don’t know if this is a recognized or safe clinic. The doctors in Leuven suggested anything not a university hospital is only going to take your money!

    • histamine intolerance February 26, 2013 at 12:22 pm #

      ugh, I know how that feels!!! No, no genetics here in belgium. I’m currently treated by Micki Rose, of the purehealth clinic, in wales of all places! She mails me all the tests, and my lovely GP here in Leuven draws blood, so we can send the tests back out. Email me @ muylaert.nele@gmail.com if you want to know more, or just need a bit of support 🙂

  5. c January 14, 2013 at 6:39 am #

    Hello, I’m in the USA and your documentation of issues sounds very familiar. Have you looked into Mastocytosis? More specifically Mast Cell Activation Syndrome (MCAD), a sub-catagory within the Masocytosis dx? This syndrome is VERY difficult to dx because many times labs will be negative. It involves release of histamines and other substances from mast cells. The mast cells are in our bodies to release these chemicals appropriately for normal processes. In MCAD, they are triggered to release inappropriately. Other substances released are prostaglandins2, heparin, … etc, etc. There are MANY substances contained within mast cells.

    I’ve explained simply but it is very complex and not many physicians are knowledgeable about it (even allergists). You might want to look up the Mastocytosis Society in the USA. (I’m not sure if you need a subscription to join but it is well worth it .. especially since you can join their forum… which is tightly controlled. It is a good one).

    MCAD symptoms are fatigue, sometimes uticaria, GI symptoms ( sometimes general discomfort, bloating, or diarrhea), food intolances, mild flushing, etc.

    Usually patients go for many years without proper diagnosis.

    I hope this helps.

    • histamine intolerance February 26, 2013 at 12:13 pm #

      I have looked it up, and discussed it with my GP but it seems most of my symptoms have been traced back to a very severe grain sensitivity…. go figure!!! Thank you for the wonderfull info tho!

  6. Lucia Buntajová January 21, 2013 at 6:48 pm #

    Hallo Nele, I was diagnozed HIT exactly 11/2 year ago. First I tried low-histamine diet- without any remarkable success. Then I started to study about this sickness a little beat more. I switched to low-protein diet. And the miracles started. Symptoms dissapeared (ofcourse until I break the diet). My daughter is on low-protein diet too (she is also HIT positive) and all my HIT-positive friends as well. How are you feeling now? Are you stabilized?

  7. evie July 24, 2013 at 11:01 am #

    Hi Nele

    I came across your blog because i also suffer histamine intolerance. After years of struggling i finally came into contact with an expert in this, her name is christine tobback. I went to see her a couple of months ago and she is the best that ever happened to me. This is a link to her website. Hope this can help you too
    http://www.optinutrics.com/NL/index.php

    • histamine intolerance August 7, 2013 at 12:40 pm #

      hey!!! yeah i’ve been with her as well 🙂 She’s so nice, but unfortunately didn’t recognise my gluten sensitivity. I hope she can do a lot of good for you!

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