Histamine, grains and lectins?

26 Feb

So I’ve been missing for a bit, and will try to pick this back up again. I would like to speak a little of the things that I’ve been doing in the period I went missing, health wise.

Last time I blogged (almost a year ago!!!!) I had just done some tests. Everything went a bit pearshaped after that. I also had a test done to see how well or poorly my immune system was doing, and it came back with a bit of an akward result. I have mucosal immuno deficiency. Say what now? Yes, that was not just my reaction, but that of my treating nutritionist as well.

http://en.wikipedia.org/wiki/Mucosal_immune_system

For the majority of people with multiple foodintolerances, or even just one, they often experience that their immune system kicks up a notch causing allergies to happen, or allergy like symptoms.

Apparently, my body decided it had to be different. My wonderfull nutritionist suggested I would take helminthic therapy, as a last resort.

http://en.wikipedia.org/wiki/Helminthic_therapy

This is often used for people who’s immune system had gone all berserk on them, but because mine was deficient I wasn’t too keen on it. With the mucosal immunodeficiency, I felt I couldn’t risk lowering that any further.

After a few months of pain, misery, fatigue, illness and the lot I ordered this:

http://kirkmanlabs.com/ProductKirkman/503/1/CD-Bioticand/

It is a completely grainfree, eggfree, and dairy free probiotic. I was a bit carefull with it, because probiotics are fermented, and some are know to increase histamine in the body. Some bacteria are histamine safe, and others are not. This particular one contains Lactobacillus plantarum, which is thought not to be histamine safe. I started out with a very tiny dose, and gradually build up from there. After a while I started noticing my sleep pattern was getting entirely borked when I took these probiotics before bed. This – to me- was a good indicator my histamine levels were building up.

So thats where I was a week ago. Quite a lot to digest, all of it.

When you have something that is so misunderstood by everyone, and you start testing all sorts of things, expect a serious slap in the face. I was so used of running from one doctor to another, and just hearing not to worry about it, to come back when it’s really necesary, that it’s all in my head, having to eat foods that I was completely oversensitive too… You start believing it is all in your head, you are making it up.

So when you get those first tests back, and they do show you something is wrong it is a relief and a blow at the same time. A relief because all of a sudden this becomes real, it is no longer in your head, or a cry for attention. And a blow for that same reason. We have often been so conditioned by our healthcare to believe nothing is wrong with us, that the mere blood result that indicates otherwise, gives us quite the psychological shock!

I know for me, especially when i heard back about the mucosal immunodeficiency, it was a serious mental setback. All of a sudden, I had a visual, proof, real actual words and scientific numbers that showed me that I was really very ill. But if that was real, how could I cope with me ‘making it up’? And others believing I was making it up? Was it really real?

Getting results back, and indicating there is indeed something wrong with our bodies, after having heard and believed there wasn’t for so long takes reinventing ourselves. And that takes courages, and strength to do so.

I’m still on the probiotics, altho they are making me histaminey. If anything, I need to get rid of that extreme lectin sensitivity ruining my gut. I had a few blueberries this morning, and altho they are on no lectin list, i can assure you the extreme lectin sensitive person will not  like them. Scratch that, and move forward again! Always move forward!

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Leaky gut and barrier problems

31 Mar

I had taken the HNMT-gene defect test a few months ago. It came back as clear, so I do not have a gene defect concerning histamine intolerance.

Off course once starts wondering what has triggered it to flare up? Leaky gut syndrome can be a cause of many intolerances.  Now what is Leaky Gut Syndrome? Basically, it means that underlying food issues such as other intolerances and the lot, can cause  damage to the gut causing it to get more ‘leaky’. So your gut barrier is just letting a lot more stuff through then is really good for you.

Let’s say you have a lactose intolerance, but unaware of it.  Because of the constant triggering of your gut barrier, you will cause inflammation and your gut barrier will get more leaky. Because it gets more leaky, other stuff gets into the bloodstream that really shouldn’t be there causing your body to react to it.

This was sent to me by my nutritionist Micki Rose:

A leak in the intestine- the leaky-gut syndrome

In people with leaky-gut syndrome the “tight junctions” between the mucosa cells have become loose and with this the permeability of the gut mucosa is increased. The causes for this can include:

A bad diet, taking pain killers and/or antibiotics, gut dysbiosis or psychological stress. The leaky gut mucosa releases substances into the blood stream like allergy causing antigens and histamine, which should normally not be absorbed.

Practice has shown that the well-known allergy of the immediate onset type actually had to be classified into three groups:

a) The classic immediate onset allergy triggered by specific

IgE antibodies.

b) Histamine intolerance

c) A combination of a) and b)

In each of these groups the leaky-gut syndrome can occur and again lead to a considerable worsening of symptoms.”

So there you have it. Often one foodintolerance goes hand in hand with another, and this is the reason why.. Healing the gut should always be on your list of things to do 😉

I also want to refer to the article below, as Micki Rose has a knack for explaining it better then I can.

http://trulyglutenfree.co.uk/2011/10/06/hope-for-gluten-sensitives-and-multiple-intolerants/

And then this. Leaky gut can be tested. Even tho its a bit expensive, it might give you proper insight on how well/bad your gut is doing!

http://trulyglutenfree.co.uk/2011/12/19/new-barrier-permeabilityleaky-gut-test/

And also this is definetly something to keep an eye open for!!!

http://trulyglutenfree.co.uk/2012/03/19/can-we-stop-the-gluten-sensitivity/

We’ll be needing to keep an eye out on all barriers, and not just the gut!

Gut luck to all!

Gluten sensitive. Gluten what???

18 Mar

So I have been doing research for the past 6 years now into histamine, and only the past year I have been looking more into gluten.

The reason for this was very simple. Altho I had been on a histamine low diet for 5 years, I was getting daily headaches and migraines that would last weeks, my joints and muscle would feel like I was run over by a truck, and I still couldn’t sleep was waking up every singly night multiple times per night.

I didn’t have a clue what was going on, was on a LOT of painkillers and very often friends and family just told me it was all in my head. You can imagine that wasn’t really helpful for my mood at all. I seriously started believing I was just making it all up till a very lovely and bright lady mentioned a nutritionist to me. I contacted this lady and explained  my symptoms and the first thing she said was ‘if you don’t have NCGS, I’ll eat my own hat’.

She never had to eat her own hat.

NCGS. Non Coeliac Gluten sensitivity. Say what? Yup, that was my reaction too. I only ever heard of gluten intolerance, or coeliacs so this was all ever so new to me.

The test results came back a double DQ1/DQ1 whammy. So what did this mean? Basically I’m grain sensitive. Most gluten intolerant people and coeliacs are put on a wheat free diet, but truth is all grains contain gluten! Yup, including corn and rice too!

So I put myself on a grainfree diet, and symptoms soon started to get better. But that wasn’t the end of the ride tho… far from it.

It turns out I’m very sensitive to corn ( corn contains the gluten Zien, and up to 55% of it!!!!! No wonder its bad for you…) so I had to cut out all corn.

Well, that’s easy enough you might think. Well, think again! Corn is used in EVERYTHING!!!! As good as in all medication, make up, toiletries, sunscreens, householdproducts, etc etc etc… Believe me, tackling that still is a challenge.

Now why is this so important to me? Before I was diagnosed NCGS, I had already asked my GP about  possible gluten issues. She told me that I do not display the typical symptoms of gluten intolerant people.

Well, let me give you some of the symptoms that grain sensitive people suffer from..

“The Following Diseases Have Been Directly Associated with Gluten Sensitivity.

Those diagnosed with these conditions may benefit tremendously by being genetically tested for gluten sensitivity.

The following is a list of very common manifestations. Below is a more detailed list:

Asthma

Hypothyroid

Ezcema

Psoriasis

Autism

ADD/ADHD

Colic

Schizophrenia

Bipolar

Irritable Bowel Syndrome

Infertility

Chronic Constipation

Iron deficiency anemia

Osteoporosis

High Cholesterol

Non alcoholic fatty liver disease

Fibromyalgia

Chronic Fatigue syndrome

• Angina Pectoris (chest pain/pressure)

• Anorexia

• Immunoglobulinopathies

• Antiphospholipid syndrome

• Anxiety

• Apathy

• Apthous ulcers and canker sores

• Aortic Vasculitis

• Arthritis

• Juvenile rheumatoid

• Enteropathic

• Psoriatic

• rheumatoid

• Abdominal pain and distention

• Spontaneous abortion

• Addison’s Disease

• ADHD

• Alopecia (hair loss)

• Anemia (can be caused by the following nutrient deficiencies)

• Iron deficiency

• Folate deficiency

• B-12 deficiency

• B-6 deficiency

• Vitamin C deficiency

• Vitamin E deficiency

• Copper deficiency

• Ataxia

• Atherosclerosis

• Autism and other learning disorders

• Cholangitis (gall bladder)

• Dermatitis Herpetiformis

• Autoimmune hepatitis

• Polyglandular syndrome

• Thyroiditis (hypothyroidism)

• Bitot’s spots

• Blepharitis

• Abnormal blurry vision

• Bone pain

• Bone fractures

• Cachexia

• Bronchiectasis

• Bronchoalveolitis

• Adenocarcinoma of the intestine

• Small cell esophageal cancer

• Melanoma

• Asthma

• Cardiomegaly

• Cardiomyopathy

• Cataracts

• Cerebral perfusion abnormalities

• Cheilosis

• Chorea

• Coagulation abnormalities

• Crohn’s disease

• Ulcerative colitis

• Chronic constipation

• Coronary artery disease

• Diarrhea

• Lymphoma

• Cutaneous vasculitis

• Cystic fibrosis

• Delayed puberty

• Failure to thrive

• Dementia

• Depression

• Dermatomyositis

• Diabetes Mellitus type I (shares the same HLA genes as Celiac disease)

• Down syndrome

• Dysmenorrhea

• Dysgeusia

• Duodenal erosions

• Edema

• Eczema

• Dysphagia

• Epilepsy

• Spontaneous nose bleeds

• Erythema nodosum

• CFS

• Growth retardation

• Mental retardation

• Secondary food allergy response

• Blood in the stool

• Gastric bloating

• Grave’s disease

• Bleeding gums

• Hair loss

• Heartburn

• H. pylori infection

• Hives

• NAFL

• Malnutrition and nutritional deficiencies

• Infertility

• Hypogonadism

• Hypoglycemia

• Hypospenism

• Thrombocytopenia

• Impotence

• Osteoporosis

• Insomnia

• IBS (irritable bowel syndrome)

• Keratomalacia

• Lactose intolerance

• Loss of smell

• Non Hodgkin lymphoma

• Early menopause

• Migraine headache

• Multiple sclerosis

• Muscle wasting

• Myopathy

• Obesity

• Osteomalacia

• Osteopenia

• Parathyroid carcinoma

• Pancreatic insufficiency

• Polymyositis

• PMS

• Biliary cirrhosis

• Psoriasis

• Dermatitis

• Sjogren’s syndrome

• Short stature

• Scleroderma

• Steatorrhea

• Spina bifida

• SLE

• Tremors

• Parkinson’s disease

• Glossitis

• Vitiligo

• Vomiting

• Vaginitis

• UTI

Umpf, still with me? Quite the list aye? So you might suffer from Fibromyalgia and not even know it could be gluten related!

My symptoms were incredibly wide. Most important I suffer from migraines that will last days. I will wake up various times per night, usually bathing in sweat. My joints feel like they’re at about to explode, or have rusted solid. My skin will look horrid as well. Other symptoms I have are: ADHD, bone fractures, exzema, depression,… .

Quite the list right? And all that for something most people haven’t heard about! And here lies the problem. Because it is a bit of an unknown issue, a lot of gluten sensitive people remain undiagnosed. The big problem is that they may think they are gluten intolerant and will have scratched wheat, but will keep poisoning themselves with other grains such as rice and corn.

Sound familiar? Well, here are a few tips to help you out.

Keep a food diary. I seriously can’t stress this out enough how important this is! However with sensitivities it is always important to keep in mind you might be dealing with delayed reactions.. Keeping a food diary will provide a good summary and will give you a nice insight of all the symptoms you have.

Go grainfree! I know this sounds really hard, especially in this society where everything is made out of grains but trust me, it is possible! You can look up some very nice paleo cooking sites that will help you get creative in the kitchen.

If you feel improvement after having gone grainfree, you can either get tested or just continue going grainfree. After all, the human body was never engineered to digest grains…

Here’s a full very helpful websites:

http://www.purehealthshop.co.uk/shop/article_112/TrulyGlutenFree-ebook.html?shop_param=cid%3D4%26aid%3D112%26

I found this book very very helpfull! Not only explains it why gluten are bad for you, but also provides helpfull tips and tricks in how to deal with it! Definetly worth its money!!

http://trulyglutenfree.co.uk/

Michaela Rose’s website. She has NCGS herself, and she bombs this blog with tons and tons of info regarding food, supplements, cross contamination and tests! Very helpfull!

http://www.glutenfreesociety.org/

This society does genetic testing for NCGS. Definetly well worth taking a look around their website..

http://www.elanaspantry.com/

and some paleo cooking. Do be carefull tho! If you are very sensitive to grain, you will most likely not be able to tolerate grainfed chickens, or grainfed meat in general. Also, always go for line caught eco sustainable fish rather then aquaculture.

All the best!

nele

Video

Paleo Diet and Histamine

28 Feb

Useful links:

http://www.urticaria.thunderworksinc.com/pages/lowhistamine.htm

http://www.allergyuk.org/fs_histamine.aspx

http://paleodiet.com/

http://paleodietlifestyle.com/

Histamine low cookbook:

http://www.theredwineheadachecookbook.com/

Chemicals on your skin and ADHD

14 Nov

Hey everyone!

Today I’d like to blog about somehting quite important. Putting things on your skin!

We put all sorts of things on our skin, going from  all sorts of make up, to deodorant, cremes, etc etc… Now why would this be such a problem? If you ask around, most scienticists will tell you the skin is impermeable, and you shouldn’t worry about histamine rich products on your skin. However, it is these same scientists that will prescribe a nicotine patch, or a birth control patch.. and these are absorbed by skin, otherwise they woudln’t work right? And what about sunshine? We absorb the vitamines of the sun as well don’t we?

Now there’s a LOT of discussion going on on wether or not we should be carefull with putting products on our skin, but I say..why take the risk? Most products we put on our skin are made in labs, by people with white coats, wearing safety goggles and gloves.. and yet thats the product we put on our skin?

I do believe that the skin can absorb some parts of your make up, deodorant, or cremes if the particles are small enough. I can’t speak for everyone off course, but for me it goes so far I can’t wear plasters or band-aids (they contain gluten.. I left it on my arm for a few hours, got a booming migraine and a horrid rash on my arm). This all depends on your level of severity off course!

These links below are quite interesting on the matter! Take your time with them, and think about what you really want to put on your skin!

http://www.drmyhill.co.uk/wiki/Minerals_and_vitamins_in_creams

(link provided by https://www.facebook.com/TheRedWineHeadacheCookbook )

http://www.thirdage.com/news/coeliac-disease-sufferers-should-be-wary-of-cosmetics-containing-gluten-warn-researchers_11-03-2011

And then another matter.. The past week I’ve had several questions from people about histamine intolerance and ADHD. I was diagnosed ADHD myself when I first started university, and immediately put on horrible medication that made me very ill.  After switching psychiatrist, I was put on Ritalin, which made me very robot like. The hubby decided enough was enough and we stopped Ritalin, only to find out I was having detox symptoms. Not my finest hour I can tell you! In my final year at university, I saw a behavioral therapist who helped me study.. to no avail.

Two years later I got my histamine intolerance diagnosis and went histamine low. I didn’t see change right away, but I could focus a lot better. he big change for me came with the diagnosis of NCGS, or Non Coeliac Gluten Sensitivity. Going both histamine low and grain free has made a world of difference in my ADHD world. I have grown loads and loads calmed, am less impulsive, can work for longer then 10 minutes on one task (!!) and I will actually finish what I have started!

Now I want to point out, that with my ADHD both histamine and gliadines were an issue! Unfortunately, there has been little research done on the matter, and most of the research done involves children and not adults (altho very often the food intolerance will pop up at later age, due to poisoning over many many years). Very often, an ADHD child/adult is given meds, without further questioning..

I’ve looked up some info on the matter:

http://www.associatedcontent.com/article/155824/food_intolerance_allergies_in_the_adhd_pg2.html?cat=25

http://www.foodsmatter.com/asd_autism/adhd_causes/articles/histamine_genetics_adhd.html

If you have a child with ADHD, or you have ADHD and suspect histamine being the culprit (or any other type of food), talk this over with your GP, or psychologist or psychiatrist. Keep a food diary! Write down exactly how you feel, when you feel it, what you eat, etc etc… Food diaries are often a wonderfull source in discovering any type of food intolerance!

Try suggesting going histamine low, or even just avoiding all additives, colorants and parabenes and benzoates. If you do want to go histamine low, find a good nutritionist together with your GP/psychologist/psychiatrist and get a basic skin prick test done. These contain a histamine controle test, and will often give you a clue as where to look. Never ever decide to start dieting on your own, but always get help of a professional! Print out as much articles as needed to make a case, and go see your doctor!

The foods we eat these days are far from healthy. We grab a quick snack from a fastfoodrestaurant, that is filled with flavor enhancers and preservatives.. we eat all sorts of colorfull candies, pastries, pre-made foods..etc etc. We look at the telly and see commercials that these foods will provide a happy family, smiles on everyone’s faces.. well, let me tell you, it wont do that. Very often these foods are highly chemical. Remember when you were in high school and you did all sorts of chemical tests in a tube.. you wouldn’t drink that right? And yet, we eat chemicals every day.. maybe high time to leave those chemicals behind, and start looking for a healthier way of life!

All the best!

Nele

Video

Stick to your diet!

19 Oct

Helpful Links:

http://www.ajcn.org/content/85/5/1185.full

http://www.histrelief.com/

Video

Make up!!!!

13 Oct

Helpful Links:

http://www.drhauschka.com/

http://www.glutenfreesociety.org/gluten-free-society-blog/hidden-corn-based-ingredients/

http://www.logona.com/Lavaerde/Lava_E/index.html